"Young people with alopecia often feel very alone. It is good to know that someone else shares your problem and understands. So we have put together this collection of true stories and photos of real people with alopecia, so you can read about how they coped with it. Most people with alopecia feel low about it sometimes. Some people feel upset about it all the time and think about it every day. Others manage to forget about it and get on with their lives. But the best thing is if you and your family can accept the alopecia as part of the way you are, just like the colour of your eyes or skin, or if you have freckles. Some of the people in this book have gone through bad times with their alopecia, and they have come through it. They inspired us and we hope they will inspire you." Professor Celia Moss, Consultant Dermatologist, Birmingham Children’s Hospital Download Alopecia: My Story.
Coping with Alopecia
Author: Nigel Hunt and Sue McHale Year of Publication: 2004
Written by two psychologists, one of whom has alopecia, this book covers alopecia areata, totalis, universalis and androgenetic. It covers all aspects from the physical symptoms, causes and treatments, to the psychological impact and the possible effect on morale, relationships and work. It is a well researched work. Quite blunt at times but factual and with helpful, illustrative case studies. I found it very useful. It certainly covered all the areas of alopecia I was hoping to have explained, and dealt with them in an easy to understand non-technical way. Not for the faint-hearted, but if you can face having all the potential consequences described, it is a very honest book and a useful work of reference. Ideal for anyone wanting to find out all the basic information about alopecia.
Alopecia Areata, Understanding and Coping with Hair Loss
Author: Wendy Thompson, Jerry Shapiro Year of Publication: 1996
This book is a good general all rounder for people with Alopecia Areata. It has sections for children and adults. It talks about coping, treatments and the latest research. It also has information on wigs and head coverings. Because it is an American book it focuses on the American organisation NAAF, and all things American such as claiming the cost of a wig from your insurance company instead of the NHS. Overall I found that this book was very useful and if you were to buy one book on alopecia I would suggest you buy this one. However because it was an American book some of it could be seen as irrelevant to people from other countries.
Author: Daniel Regan, Jennifer Chambers Year of Publication: 2015
Alopecia Uncovered is a fine art photography book that explores the therapeutic potential of the portrait through a series of arresting black and white images, essays and journeys of those affected by the condition.
Daniel Regan's Alopecia Project, in which he invited those with alopecia to be photographed as and how they wished to be represented, was shot over a three year period. For some of his subjects it involved baring all and showing their natural selves, whilst others wised to retain their eyelashes and eyebrows. However the true message of this project is that it's OK being you, but most importantly being the you that you choose.
Now combined with analytical texts by art psychotherapist Jennifer Chamvers, Alopecia Uncovered encapsulates the emotional difficulties of those with alopecia by allowing subjects to reclaim their sense of self by confronting these images of themselves. This book investigates issues of self-esteem, fractured identities and perceptions of illness, illustrated through the use of empowering yet vulnerable photography that challenges the social constructs of beauty.
Head-On, Stories of Alopecia
Author: Deeann Callis Graham Year of Publication: 2015
Head-On, Stories of Alopecia is a collection of personal narratives that follow the courageous journeys of over 75 writers as they find their way after being diagnosed with alopecia areata, a hair loss condition that affects over 146 million men, women and children throughout the world.
What begins as a small bald spot eventually leads to a diagnosis of a confusing and relatively unknown autoimmune disease. They soon learn there are no reliable cures and that alopecia could possibly last a lifetime. Their discovery of acceptance, adaptability and finally celebration are intertwined in these thought provoking inspiring stories and captivating photos.
As they unearth their new identities and reclaim their lives, there is no doubt you will begin to recognise your own distinct ability to tackle any challenge, Head-On.
Author Deeann writes: "After decades of not knowing a single person with alopecia, I finally met others who understood. By connecting with all these incredible writers and sharing the message of "we are more than just our hair," I discovered that I love who I am and how I look without hair. Coordinating Head-On, Stories of Alopecia has been a rewarding experience, and it has become everything I would have wanted to see and read when I was first diagnosed."