I am Lucy Rogers, one of Alopecia UK's trustees. I am also the charity's treasurer. I was appointed to these roles in November 2017.
How did I get involved with Alopecia UK?
I first volunteered with Alopecia UK at the Alton Towers trip in 2016. This was my first time meeting so many other people with Alopecia as I’d never really got involved with support groups before. As I’ve always been ok with having the condition, I guess I just didn’t think I’d get much from it but I was wrong.It was such a humbling feeling to see how the support network really boosted people’s confidence and created such a sense of togetherness. Many people took such huge steps by going bald in public for the first time and to see how the event made such an impact on their courage really inspired me to get more involved with the charity.
Alopecia is a condition that can make people feel very isolated and alone, so to see the children meeting others like them at Alton Towers really struck a chord with me.I met my good friend Amy Harmsworth, (London support group lead) when we were both young and newly diagnosed. To have someone who understands what you’re going through and how you’re feeling is so important and I know my Alopecia journey would have been completely different if it wasn’t for Amy.
Since then both Amy and I have volunteered and fundraised wherever we can. We also took part in Total Warrior in the Lake District in August 2016 as part of the ‘Apatchy Warriors’ team.It was an amazing sense of achievement crossing the finish line with my bald-headed chums, having completed 6 miles of challenging obstacles.
What is my 'alopecia story'?
My mum found my first patch on a holiday in Wales when I was 10 years old, it was about the size of a ten pence piece.For many years after that I’d have a few large patches here and there, but I could always cover them with some clever product and hair styling (and LOTS of hairspray). At secondary school it became more difficult to hide so I started wearing hats to school. This was against the school uniform policy so I made the decision that I’d like my situation to be communicated to people rather than being asked why I was wearing a hat.Since then I have always found that being upfront with people I spend a lot of time with (at work etc) is so much easier for me.
When I went to University I decided it was time to brave the shave and I’ve never looked back since.I now own over 25 wigs and really enjoy wearing different colours and styles depending on how I’m feeling – another reason I prefer people to know, it avoids the ‘have you changed your hair?’ type questions!
Don’t get me wrong I’d absolutely love to have a full head of my own hair but I always like to think of the positives. Having Alopecia has given me some great opportunities, allowed me to meet some wonderful people and has given me the confidence to try many hairstyles I wouldn’t have done before.
What are my hopes for Alopecia UK?
My hopes are that Alopecia UK will get even bigger and even better through increased awareness and sustained fundraising. I am excited for the future of the charity following the merger with AAR-UK and think that this is a positive step in pushing the charity forward to achieve its goals. I was delighted when I was approached and asked to become part of the board. Having an accountancy background, I hope that I will bring a fresh perspective to the team and bring new ideas to help plan for the future of the charity.