Tom is a popular YouTuber who produces videos under the name
‘Tomohawk’. He has over 125,000 subscribers on his YouTube channel and over 64,000
followers on Twitter. Tom also has a separate YouTube channel called ‘Tomohawk
Talks Alopecia’. Tom is a regular attendee at our annual Alton Towers event and
is a keen advocate for greater alopecia awareness.
'I am a Yorkshire lad which is clear if you hear my accent in
my YouTube videos! I knew nothing about alopecia until the age of 14 when I
developed a small bald patch at the back of my head. I went to see my GP and
they were unsure what it was but it soon grew back.
Later, at the age of 17, I developed the same bald patch as
before. Once again my local GP was still unsure. This time it was different
though. The hair loss didn’t stop and within just a month I had lost all the
hair on my body and was given the diagnosis of ‘alopecia universalis’.
I then I undertook DCP treatment for one year at my local
dermatology ward but with no success. At this point the doctor told me that my
hair would never come back. This completely knocked my confidence. It’s difficult news to be given at any age but
at 18 years old I found it particularly tough. At the time I used to always
wear a hat and never even let family members or friends see me without my hat
But then one day I had enough of feel upset and went into
work without a hat on. I also started socialising without my hat. It was REALLY
difficult at the time but honestly by forcing myself to do that it was the best
thing I have ever done. It really helped me to feel more comfortable in my own
Now I want to use what I have learnt and been through to help
others with alopecia. I already use my YouTube platform to promote alopecia
awareness and educate people about alopecia. Awareness is a big part of what I
do but I am also keen to give some understanding to those without alopecia,
explain what it is like, so that they are not so quick to judge others.
I am excited to be an ambassador for alopecia UK because I am
very passionate about the charity and helping others with alopecia. I have
attended each of their annual trips to Alton Towers and I’m thrilled that some
of my followers have been generous enough to fundraise for Alopecia UK. I am
keen to be a role model to others, particularly young lads with alopecia,
because when I was losing my hair I wish I had someone else I could of speak to,
to help me cope with the change.'
Alopecia does not make you the person that you are. It's all up to you. Aim high. There is no reason you can't achieve anything you want to!