Alopecia UK Online Forum http://www.alopeciaonline.org.uk/forum This is an XML content feed of; Alopecia UK Online Forum : Last 10 Posts Thu, 09 Sep 2010 02:00:46 +0000 Thu, 09 Sep 2010 00:17:53 +0000 http://blogs.law.harvard.edu/tech/rss Web Wiz Forums 8.05a 30 www.alopeciaonline.org.uk/forum/RSS_topic_feed.asp New Members : newbie http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=11521&PID=327728#327728 Author: millie123
Subject: newbie
Posted: 09/September/2010 at 12:17am

hi Jan

Welcome to the forum. Glad to hear you're getting some regrowth along with the loss. As Beejay says it is a good sign.

Michelle xx ]]> Thu, 09 Sep 2010 00:17:53 +0000 http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=11521&PID=327728#327728 New Members : Hello All http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=11525&PID=327727#327727 Author: millie123
Subject: Hello All
Posted: 09/September/2010 at 12:14am

Hi Geetee
Welcome to the forum
I have had alopecia for 2 years having lost all my hair and the eyelashes in one eye over a period of 4 months. At the moment it is growing back very slowly but of course who knows whether it will hang around.

I kind of turned the coping corner with a really good wig. I had a couple of emergency ones to start with which didn't really look right of fit properly. However once I got a great one and looked ok on the outside the inside started to heal a bit because I then had some control over who I told and who i didn't.
The losing stage is very hard, as no one knows how far it will go, although I think I knew from the beginning that all mine would fall out.
I wouldn't say I have accepted having alopecia as I'm still annoyed by it but I have found a way of handling having it and wont let it defeat me.
Hope you enjoy the forum; there's plenty of good advice and support available. ]]> Thu, 09 Sep 2010 00:14:20 +0000 http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=11525&PID=327727#327727 New Members : Hello All http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=11525&PID=327726#327726 Author: Sharan
Subject: Hello All
Posted: 08/September/2010 at 9:55pm

Hi Geetee
Welcome to AUK
My ali-p progressed very quickly and I found myself AU at 17.
So always had chronic hairloss. Lots of people conceal Areata with their own locks and never need appliances and unfortunately for some the progression is slow and painful. I feel lucky having no growth. It removes the confusion of is it growing in or falling out!
There are so many options out there to assist, try out our supplier section and see whats in your area.
Thanks for joining in, and enjoy the site
]]> Wed, 08 Sep 2010 21:55:44 +0000 http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=11525&PID=327726#327726 New Members : newbie http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=11521&PID=327725#327725 Author: Sharan
Subject: newbie
Posted: 08/September/2010 at 9:47pm

Hi Jan
Warm welcometo AUK
Loads of supportive words and positive vibes from lovely folks who totally understand your fears.
Be kind to yourself and do whatever makes you happy
I've grew up with ali-p and it shares my room now instead of taking over the room with me cowering in the corner.
Take care
]]> Wed, 08 Sep 2010 21:47:49 +0000 http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=11521&PID=327725#327725 New Members : Hello All http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=11525&PID=327724#327724 Author: Geetee
Subject: Hello All
Posted: 08/September/2010 at 9:11pm

I'm new here I have had Alopecia  areata  I would say on and off for 15 years.  Have lost a large section underneath.  It has always grown back in the past but I am losing such a lot that I am worrying it will all go eventually..... any thoughts?  can anyone tell me of their experiences?]]> Wed, 08 Sep 2010 21:11:03 +0000 http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=11525&PID=327724#327724 New Members : newbie http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=11521&PID=327723#327723 Author: tricia
Subject: newbie
Posted: 08/September/2010 at 8:39pm

Hi Jan
I agree with all that's been said, my moto now is to live life to the full and don't let AP stop you from living your dream.
It's only hair- it could be worse and for that we must be grateful we can still look fab.
Take care
Tricia
x]]> Wed, 08 Sep 2010 20:39:46 +0000 http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=11521&PID=327723#327723 New Members : Another newbie http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=11497&PID=327722#327722 Author: tricia
Subject: Another newbie
Posted: 08/September/2010 at 8:29pm

Hi Helen
Hello and welcome from me also. I can't top what has already been said by other forum members, other than to say it boosts my own strength and confidence when I read comments and I know in my heart that we'll always get the support from eachother when we log in to the forum.
Take care
Tricia
x]]> Wed, 08 Sep 2010 20:29:02 +0000 http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=11497&PID=327722#327722 New Members : Another newbie http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=11497&PID=327721#327721 Author: hair-we-go
Subject: Another newbie
Posted: 08/September/2010 at 6:15pm

Hi Helen - just to say welcome from me too.  It's a rough road at times, but you'll find lots of support here from those of us who know exactly what you're going through.  I've found that trying to be positive (some of the time, at least!) keeping my sense of humour (when possible!) and having a good moan (as required!) really helps.  Nearly as much as this forum - which those of us who, like you and me, are relative newbies on the alopecia journey, are very lucky to have.
Keep in touch, and take care,
Sue
 
]]> Wed, 08 Sep 2010 18:15:19 +0000 http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=11497&PID=327721#327721 Your Experiences : Colds http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=11524&PID=327720#327720 Author: hair-we-go
Subject: Colds
Posted: 08/September/2010 at 6:03pm

I am feeling very sorry for myself - I have the WORST cold I have had for years and can't help thinking that if my immune system was doing what it is supposed to do, rather than expending all its energy mucking around with my hair follicles, I'd be recovering a heck of a lot quicker (or at least might not have caught it in the first place!). 
So ... I was wondering whether to take something to boost my immune system, but then remembered that alopecia is sometimes described as the immune system in 'overdrive mode'.  So what is going on - does it need suppressing or boosting? 
I know I can only treat the symptoms of the cold at this stage, but I really don't fancy going thro winter catching everything going. 
Very confused!
Sue
]]> Wed, 08 Sep 2010 18:03:12 +0000 http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=11524&PID=327720#327720 New Members : Another newbie http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=11497&PID=327719#327719 Author: Sharan
Subject: Another newbie
Posted: 08/September/2010 at 6:02pm

Hiya Helen
Glad youve found us here. It can be so theraputic writing down your feelings, sometimes hard to get into words and reading other people stories of ali-p gives a strong connection especially when feeling so isolated.
You are being very assertive so well done, unfortunately medics are rather restricted when it comes to giving us news we want to hear. There is no 'good' news I'm afraid as its incurable. Lots of maybe's.
Research goes on and one day we may all have a breakthrough.
Enjoy the site and try searching past topics as there have loads of worthwhile discussions around here.
Take care

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