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Jackie 
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Joined: 11/September/2005
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 Topic: Psycholosocal impact of alopecia
Posted: 04/August/2010 at 10:02pm |
Psychosocial impact of alopecia
Researchers in the Department of Psychology at the University of Westminster have been conducting research into the psychosocial impact of alopecia. This research has recently been published (Cartwright, Endean and Porter 2009) and they are planning to extend it in order to examine the role of treatment experiences and social support. The goal of this research is to help sufferers and their families’ develop helpful coping strategies.
As part of this research we propose to conduct pilot work. This involves the development of an on-line questionnaire to measure treatment experiences, coping and quality of life. The questionnaire will be available on-line for a short period of time during July. We would then use the data generated to inform a larger scale international study beginning in 2011. Ethical approval for this study has been granted by the University of Westminster Ethics committee and we can guarantee anonymity and confidentiality for all participants.
http://home.wmin.ac.uk/psychology2/mayuri/StartQuestionnaire.asp
Edited by Jackie - 05/August/2010 at 11:50am
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Consider getting involved with AUK http://www.alopeciaonline.org.uk/get-involved.asp
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Jackie
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Posted: 05/August/2010 at 11:53am |
Just completed the questionnaire - it didn't take too long - found it quite interesting regarding compliementary therparies.....
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Consider getting involved with AUK http://www.alopeciaonline.org.uk/get-involved.asp
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Melanie Gibbons
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Posted: 04/August/2011 at 7:26pm |
do they still need responses ?
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qualitee68
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Posted: 21/October/2011 at 8:32am |
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is it true its cause hair loss ?
what called people this alopecia areata
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shame123
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Posted: 25/January/2012 at 8:58am |
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Hair loss has become a silent epidemic with results that are not exactly fatal but prove to have a strong psychological impact.
Edited by AUK_moderator_1 - 25/January/2012 at 9:16am
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1dirtydancer
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Posted: 23/April/2012 at 1:35pm |
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Hi Jackie my name is Karena I'm a PhD student at The university of Strathclyde in Glasgow. I'm working on a collaborative study looking at the wig user experience and how wig technology can help improve their experiences.
The research include people from Psychology, Design Engineering, Chemistry & Chemical Engineering. I'm very interested in your previous study and would like an opportunity to discuss your findings. I'm conducting a mixed method approach having piloted focus groups and semi-structured interviews. I'm finalising a questionnaire and would be interested in any advice you have on this subject, given the topic area of Alopecia. I'm an Alopecian and wear wigs myself, so I have an insight to some of the problems, but I'd really like your professional advice on developing a questionnaire for other Alopecians'. Please feel free to contact me back with any comments or suggestions. It's amazing to hear other research is happening in this area, I feel very inspired by your work.
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Cheers for taking the time to read my post
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gillmac
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Posted: 22/May/2012 at 8:53pm |
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just done the questionnaire. It is very insightful and worthwhile doing.
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griffin13
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Posted: 05/August/2012 at 2:46pm |
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i done the questionnaire and i fully agree with everything i have answered although i wish there were explanation boxes for the spouse/partner parents and friends section so that i could explain what my answers really mean without being blunt
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everything happens for a reason <3
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kndge9584
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Posted: 11/October/2012 at 11:58am |
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the pshycosocial impact of alopecia I am doubtful if stem-cell therapy has reached this advanced stage; i am
doubtful as stem-cell research is still in an infant stage and they
would work over everything else in the body before thinking of hair.
Hair, for them wouldn't be a priority. So, I am doubtful and even if
it's there, it would not have that perfection, rather have some unknown
risks, which they won't tell you.
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