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hi i'm new and feeling low need some advice

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kelzababy View Drop Down
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Joined: 05/August/2012
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Post Options Post Options   Thanks (0) Thanks(0)   Quote kelzababy Quote  Post ReplyReply Direct Link To This Post Posted: 08/August/2012 at 12:59pm
i get a few pains in my patches but there ok we have found 7 patches now and im just getting more and more upset with it now and didnt sleep much last night as im so worried just want it to stop falling out

kelz x
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BexShez View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote BexShez Quote  Post ReplyReply Direct Link To This Post Posted: 09/August/2012 at 7:41pm
Hi, im also a new member here this is my first post :) Im 20 years old, almost 21, i found out i had alopecia a couple of months ago when my mother in law actually spotted my first patch, it was only the size of a ten pence piece max but it has since grown bigger. I found another patch yesterday which is about the same size the first one was.

Iv always had long thick hair and found it quite a shock to discover i was losing it. Im finding it difficult to deal with it myself, being such a young age. At the moment its easy to cover the patches by just slightly changing my hair style and only a select few people actually know. I got scared and upset when i found my 2nd patch, feeling more worried at not having any hair, it doesnt really bother me what other people think, just how i'd cope myself, even if i had to acquire a wig.

I feel better in myself seeing how other people feel and that there are others in the same position as me, I just wonder how everybody else manages to cope with it emotionally as at the moment for me i seem to get pretty upset when im on my own and sometimes have to have a little cry just to get my emotions out as its hard to explain to someone, who doesnt have the condition, how exactly it makes me feel and how hard it is everyday to make myself comfortable in how i look, and making sure i cover my patches so they cant be spotted by anyone so i dont have to deal with people nosying at whats up with me .

Just hoping for advice from people with the same condition :)
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proudmummyof2 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote proudmummyof2 Quote  Post ReplyReply Direct Link To This Post Posted: 09/August/2012 at 8:33pm
hi i was 16 1/2 when i first started loosing my hair and it was awful i had huge chunks of hair coming out but dermos told me that i wouldnt loose all my hair but i did i have now for the past yr - yr 1/2 been bald everywhere when i finally lost everywhere i collapsed in my kitchen as i couldnt hack it i am slowly getting there but regards to advice id say having a positive view and dont get stressed as this is first stage and it is very important not to stress out cause it could lead to more hair loss. i got stressed, the more i stressed the more i seemed to loose :( it still gets me down and everyone seems to think i want pity when i cry like once a week i think thats good because releasing your tears you will feel better, i have 2 young kids aged 3 yrs and 7 months and they get me through each living day and i cherish them with all my heart but even as a devoted mum to my beautiful babies and after busy days i still find time for me to get upset and want to get my hair back if i ever do ill be happy but if not then i no ive always got my kids beautiful faces to be happy for. 

as for patches can u cover with a cap or maybe a hair extension but even need a wig ? youd be suprised how nice some of them and try to get used to the idea of trying to accept ur self!

sorry if ive gone on 


bekii

 
hi bekii and have au

i love my 2 babies they mean the world to me!
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BeeJay View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote BeeJay Quote  Post ReplyReply Direct Link To This Post Posted: 09/August/2012 at 9:04pm
Hi BexShez welcome to the forum
 
I'd say you are very early into this, and certainly by no means expected to be able to cope.  In fact none of us cope with this every single minute of every single day.  Even very long termers like me, 40 years, find that there are times when its all too much and sob buckets.
What tends to happen is the bad days get further apart, but never go away.  So whereas in the beginning you might cry every single day and find every day so very hard, it will get to a point where the bad days come months apart, and the upset can last only a smidge of time.  There is nothing to say you need to have reached a certain point by a certain time, it all works through, as and when.
Unfortunately no-one from anywhere can tell you how much hair you will lose, how fast, when it will come back etc.  And that means absolutely no-one.  Alopecia works to its own timetable, it doesn't follow that what happens for one person is an example for another.  The variations in the condition are huge.
Stress is not good for us, it will just make us feel rotten - but at the moment medically speaking there is no known cause for alopecia.  Many reasons get put forward, but at the moment they are all personal opinions, which may well be true, but so far not able to be proven.  There isn't even an agreement of the time when an event happens, and the hairloss.  And hairloss happens to people at the best and worst times in their life,  to tiny babies and mature adults - there is no sense to it at all.
But whatever happens, whatever is needed, you will find people here who understand and who have the experience, so read around lots of information on all sorts of things.
 
Take care
BJ
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