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Frontal Fibrosing Alopecia ??

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Pavla View Drop Down
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Joined: 15/June/2014
Location: Newcastle
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Points: 85
Post Options Post Options   Thanks (0) Thanks(0)   Quote Pavla Quote  Post ReplyReply Direct Link To This Post Posted: 22/July/2017 at 9:04pm
Paw...it's been three years since my FFA diagnosis.  I've been using Regaine 5% for three years and taking Hydroxychloroquine and applying Betnovate Scalp Application.  I also received sterioid injections into my scalp for a year (undertaken at Dermotology Dept. at local hospital).  My hairline hasn't receeded any further for over two years now (now only scheduled for a yearly check up at the hospital).  Not sure what might have been the situation if I hadn't had a good Consultant (who specialised in hair loss).  She joined six months after I first noticed my hair loss.  I went to see a Tricologist privately as I couldn't wait the six weeks for a hospital appointment.  He diagnosed FFA immediately (although he did say a biopsy would be required).  He wrote a letter to my GP asking him to prescribe Hydroxychloroquine and recommended I purchase Regaine5%  (not available on prescription).  So I was taking these for a good couple of months before my first hospital appointment which was with a Dermatologist who just "poo-pooed" the fact I was using Regaine.  Fortunately, I was 'saved' by the arrival of Tee (a Malaysian Dermatologist who had spent three years with the world's leaving hairloss expert in Canada).  She instigated the steroid injections and insisted I keep with the Regaine.  You know with FFA that the hair will never grow back but the Regaine is used just behind the hairline to encourage growth, strengthen the remaining hair and also thicken the remaining hair.  It has definitely done this.  I am able to hide my hair loss with a short bob and fringe thanks to the amount of hair I have remaining (and the skills of a great hairdresser).  You have to have your eyes checked annually if you use Hydroxychloroquine.  I have now been prescribed a mild sterioid gel to use about my eyebrows as I do suffer a little bit from 'itching'.  I use Regaine 5% twice a day, take one Hydroxycloroquine table a day and just use the Betnovate Scalp Application about once a week.
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