The following is details of a study into Frontal Fibrosing Alopecia (FFA) and I am posting on the forum in case any of you with FFA would like to take part:
Dr Christos Tziotzios, an academic specialist registrar in Dermatology, is working with John McGrath, Professor of Molecular Dermatology, Michael Simpson, Professor of Genomic Medicine and Dr David Fenton, Consultant Dermatologist and Expert in Hair Disorders, at St John's Institute of Dermatology in London on genetic aspects of frontal fibrosing alopecia (FFA).
The team of researchers are collecting DNA samples from individuals affected by FFA and would be delighted to see you in their Research Clinic, which takes place at Guy's Hospital in London. A number of clinicians in other UK cities and towns are registered collaborators and it may be possible for you to be seen locally.
The research appointment involves taking a blood sample for extracting your genetic material (DNA) and a focused clinical history and lasts 20-30 minutes on average. The research study is supported by a Fellowship award to Dr Tziotzios by the National Institute for Health Research (NIHR), has been ethically approved and adheres to Good Clinical Practice guidelines.
The aim is to understand the genetic basis of this distressing condition with the hope to better direct future treatments. To participate in the research or for any questions or clarification please firstname.lastname@example.org.