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Lichen Planopilaris Symptoms

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CosmicSediment View Drop Down
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    Posted: 29/March/2017 at 9:46pm

Hi all

Feel like I'm spamming a little bit since I just posted not long ago but I've developed what I think may be another symptom and I just wondered if anyone could shed any light. Prior to this new one I had one symptom - an itch on my forehead. It's kind of near my hairline but not in it.

Now, I have what looks like a rash on my forehead: dry skin and small red bumps. It almost looks like a mild heat rash and it's all over my forehead, not just near my hairline. Of course it could just be an unrelated coincidence or maybe I'm reading too much into it but it is quite bizarre.

If anyone has experienced anything similar please can you let me know? I'm going to mention it to my derm the next time I see her but that's not for weeks yet. I'd be very interested in anyone else's input!

Thanks

Edited by CosmicSediment - 29/March/2017 at 9:46pm
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Lesley10 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lesley10 Quote  Post ReplyReply Direct Link To This Post Posted: 06/April/2017 at 11:23am
Hi, I have been diagnosed with FFA associated with lichen planopilaris. I noticed a rash like this on my forehead for the first time this week. As you say, like a red heat rash, raised rash under the skin. It went across my forehead just over what is left of my eyebrows. I will mention it to my dermatologist when I go on the 19th.   
Good luck.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote CosmicSediment Quote  Post ReplyReply Direct Link To This Post Posted: 11/April/2017 at 7:27pm
Hi Lesley

That's interesting that you mention a similar rash. I asked a dermatologist (hair loss specialist) who said the time had never heard of that symptom, so perhaps it is just a coincidence that we both had this? Did yours persist? Mine doesn't seem to have but I do feel like maybe my forehead is a little bumpier than it was.

Thank you for your reply. Have you had biopsies to confirm your diagnosis? I am still waiting for mine. I have not had any hair loss so far apart from maybe a little from my eyebrow, funnily enough a place I've had no symptoms at all! Have you had much hair loss so far?

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lesley10 Quote  Post ReplyReply Direct Link To This Post Posted: 12/April/2017 at 8:42am
Hi again
No, I have not seen this rash again although, like you, my forehead does feel bumpy.
Yes, I had a biopsy which came back 'FFA associated with Lichen Planus'.

I have lost hair mostly on one side. It has receded and gone up over my ear. It won't lay the way it used to and I am very conscious of it. It probably is not noticeable to someone else yet but I am very worried about it, especially out in a wind. I have stopped colouring my hair and feel very unattractive!!   I keep hoping it stops receding but it is still progressing and I feel quite worried about how I will cope.   The slight burning sensation that I get on the bad side will ease for a day or so but always comes back.

If you haven't lost any hair yet try not to worry. Maybe yours will not progress and I hope it doesn't.

Lesleyx
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Post Options Post Options   Thanks (0) Thanks(0)   Quote CosmicSediment Quote  Post ReplyReply Direct Link To This Post Posted: 12/April/2017 at 9:29pm
Hi Lesley

Thank you for your reply, i am very interested to see what my biopsy says. I saw your other post about being offered an alternative medication, it may be worth a try if you are experiencing that nasty feeling of being out of control which makes all of us nervous. If it doesn't agree with you you can always come off of it.

I am lucky in that I have always thought women with buzzcuts are beautiful, so I have not had as much fear or panic that others have to go through. I looked on Instagram at hashtags of things like #baldwomen #alopecia #buzzcuts and honestly I am yet to see a woman who doesn't look great. I appreciate this look is very edgy and isn't for everyone, but I couldn't justify to myself feeling bad when I saw these girls looking so good. And I really mean that too, I think it's a great look.

You are right I would bet nobody has even noticed that you've lost a bit of hair, but even if they have they won't have given it much thought. It's like a scar, people will clock it but their thoughts tend to be 'oh a scar' and then they have moved on. Losing your hair should never force you to feel unattractive and it's a great pity that the general societal attitude makes women feel so vulnerable about their appearance. I hope that you will look at photos of other women with alopecia or who have chosen to shave their hair off for their own reasons and maybe entertain the idea that you will never look as bad as the images your mind conjures. In fact a lot of the before and after pictures of shaved heads have left me thinking it's an improvement!

I will check back in once I've had my biopsy on the 24th, until then I wish you all the best. This condition is like everything, a little bit of time to adjust and you will feel so much better.

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