Alopecia UK
 
News Media About us

Donate

 
Getting involvedAbout alopeciaSupport & adviceTreatments & wigsResourcesForum

  New Posts New Posts RSS Feed - Biopsy Results
  FAQ FAQ  Forum Search   Register Register  Login Login


This discussion forum has been designed to allow you to connect with others, relieve feelings of isolation, share experiences, chat about day-to-day challenges and learn more about alopecia on a peer-to-peer support level.

Biopsy Results

 Post Reply Post Reply
Author
CosmicSediment View Drop Down
Newbie
Newbie


Joined: 14/March/2017
Location: UK
Status: Offline
Points: 8
Post Options Post Options   Thanks (0) Thanks(0)   Quote CosmicSediment Quote  Post ReplyReply Direct Link To This Post Topic: Biopsy Results
    Posted: 25/June/2017 at 5:09pm

Hi All

I was going to update my previous post but since this one has quite a lot more content I thought I would open a new thread for those interested in biopsies.

I had the biopsy done and received the results on Saturday - to say they are confusing would be an understatement. I will write out the histo report as it is:

"Mild epidermal acanthosis and early superficial follicular plugging. Mild vascular ectasia within the upper dermis and this is associated with mild perivascular and periadnexal inflammation. There is early exocytosis of lymphocytes into the basal epidermis and basal hair follicular epithelium however, a lichenoid reaction is not obvious. No fungal organisms, no obvious dermal scarring. Appearances are mildand non-specific and are not diagnostic of lichen planopilaris. Neither however do they completely exclude it"

I am a scientist and although I understand these words on their own I am not a dermatologist, so I cannot decipher their meaning in this context. Although I know the terms, seeing them together does not enable me to say "this is typical of (disease)" because I simply don't have the knowledge or education

Now, the dermatologist who I saw originally was convinced it was LPP, but the derm who did the biopsy was not at all fussed and said "looks like dermatitis to me". The first derm (the one who was certain it was LPP) has said in her letter "The findings are non-specific, they are not diagnostic of lichen planopilaris however I do note that it may be so early in the course of the condition that there are insufficient findings to make this diagnosis". She has then said she wants to continue to follow up with me and that they may repeat biopsies in the future.

So basically I am no further forward. I can truly say this is a worse position now than when I started. I had made peace with the condition and what was going to happen, and was waiting and waiting to start treatment or any kind of progress. However now I am very confused. I apparently don't have LPP that they can state, but I also can't put any of this behind me and move on because I am going to have to keep going back until they decide. 

I have been back and forward to the hospital over the past 4-5 years and I feel as if my life revolves around waiting for someone to tell me what's going on. I was so looking forward to getting on with things and I feel very wearied now.

I understand a lot of you may be saying I am lucky, but I don't feel it because as mentioned it can't be ruled out that I don't have the condition either. 

Would appreciate any input or experience anyone has

Many thanks 
Back to Top
Sponsored Links
False

Back to Top
 Post Reply Post Reply
  Share Topic   

Forum Jump Forum Permissions View Drop Down

Forum Software by Web Wiz Forums® version 10.03
Copyright ©2001-2011 Web Wiz Ltd.

Stay involved

Instagram Support us while you shop online with Raise money for Alopecia UK

Alopecia UK is a registered charity number 1111304
All content is © Alopecia UK 2017
Site by Jellymould Creative with C4 Multimedia

Visit our ebay store

Generously supported by the British Association of Dermatologists

Contact us | Membership | Suppliers directory | Privacy | Accessibility | Terms & Conditions


 

AUK

Alopecia UK is a registered charity number 1111304 and Scottish registered charity SCO44702
All content is © Alopecia UK 2017

Site by Jellymould Creative with C4 Multimedia