Thanks so much again, you are a star
After I read your first message I googled Trichologists and Ian Sallis came up! I have made an appointment to see him, earliest I can get is September but I feel reassured after what you have said that he knows what he's doing, or at least he sounds like he does. I'm seeing him in Nottingham, which is not far at all and I work there sometimes so it's handy. Also I think his charges are reasonable and it's likely I could afford to keep seeing him if I need to. I looked at what private Dermatologists charge and it's absolutely crazy, we are talking thousands for consultations and treatment! I would rather invest that sort of money in either long term treatment that works or hair systems to help my confidence, in all honesty.
So sorry to hear about your experience with the Dermatologist, I thought it was just me who had had these rubbish experiences. The first Derm I saw didn't even bother to pick up on my scalp condition, that is how little he cared! If he had been bothered I'm sure this would have been picked up 3 years ago now. It's horrible to think of how much time has been wasted.
It is great that you have found something that works for you! I hope it might work for me too. I can't imagine being able to fully disguise the loss at this stage but maybe it might be possible, who knows. If Regaine has helped you that much it's brilliant! I was taking viviscal a year or so ago - well before I knew my condition but I did know I was losing hair - and that definitely made new small hairs grow but they did fall out fairly quickly so I am guessing my hair is very weak, or perhaps the inflammation has taken over too much. Regaine sounds it costs the same as Viviscal. I don't mind taking something long term if it helps me in some way. The young Derm that recently saw me said I hadn't lost all my follicles so prescribed Dermovate to try and 'save' those, but it sounds like it just won't work to stop the inflammation.
Anyway I will wait until my appointment and see what happens.
You are right, if Ian recommends what to do to my GP, then she should listen to him. Perhaps Ian might be able to advise my young Derm on the use of steroids etc to manage the condition too. You say you had some in your scalp? I can tell the Derm that the Dermovate doesn't seem to be helping. Hopefully he will listen and do something.
I will try to be strong with my GP. It really depends on how I feel at the time. I can imagine we all feel a bit vulnerable with this condition.
I found out that Minoxidil is the same as Regaine - would you say that there's any difference? Also do you use the Regaine 5% for men or the 5% for women? I can see there are two types now.
Once again thanks for your advice, it has made me feel so much better to hear your advice re Ian and that you have had a good experience with him