Within the Alopecia community there is a high level of patient dissatisfaction either with treatment options available or with a doctor or nurse who may not have discussed any treatments with you (whether medical, psychological or physical - for example wigs - which may help individuals improve their quality of the life).
At Alopecia UK we are not even sure if healthcare professionals regularly assess your quality of life indicators (QoLs) during a consultation with you. We do know that dermatologists collect this data with other skin diseases to see if the care and treatment given has had any effect on the quality of that personís life. With alopecia we only tend to see formal assessment take place when specific psychosocial research is done which is usually to a small cohort group by a PhD student.
At Alopecia UK we are calling for improved awareness of the importance of measuring the disease severity of alopecia and the impact on quality of life. We would like to invite you to complete a modified dermatology quality of life measure which we have been given special permission to use. This will enable Alopecia UK to be proactive and demonstrate to drive for change to receive the best treatment, psychological support and social provision.
Please complete the survey
, help us to help you.