Alopecia UK are pleased to announce and support a new and exciting project led by AUK Volunteer Gwennan Thomas from Cardiff, Wales.
Gwennan has recruited a team of professionals in Cardiff, Bristol and Nottingham, to develop an Option Grid for people with alopecia areata.
This is a new concept, which was developed by Professors Glyn Elwyn and Adrian Edwards from Dartmouth College, USA and Cardiff University, Wales. Glyn and Adrian first developed Option Grids in 2009 to provide a one-page table of frequently asked questions, helping patients to discuss treatment options following a clinical diagnosis, enabling patients to make informed decisions based on personal values and preferences.
There are currently 26 Option Grids and we now have agreement from the Option Grid Collaborative to develop an “Alopecia Areata Option Grid”.
The Alopecia Areata Option Grid will provide patients with information about what treatments are available when you have been diagnosed with alopecia areata. People with alopecia areata may be offered treatments including steroid injections/creams or immunotherapy. This study will look at providing a one-page outline of treatment choices for doctors to discuss with their patients during a consultation to help patients understand what treatments are available, their side effects and the likelihood of success. This will include psychological support as a course of treatment, as we understand the effects that this often life-changing condition can have on patients. To do this we will gather information from patients and clinicians.
The team consists of:
1. Dr Richard Motley, Consultant Dermatologist, University Hospital Wales, Cardiff
2. Professor Glyn Elwyn, Clinical Professor, The Dartmouth Center for Health Care, USA
3. Dr Marie-Anne Durand, Senior Researcher, Cardiff University
4. Ms Gwennan Thomas, Patient Representative and AUK Volunteer
5. Dr Elinor Farrell, Academic Foundation Doctor, Royal Glamorgan Hospital, Newport
6. Dr Kun Sen Chen, Specialist Dermatology Registrar, University Hospital Wales, Cardiff
7. Mr Robert Whistance, Surgical Research Fellow, University of Bristol
8. Professor Nigel Hunt, Associate Professor, Division of Psychiatry and Applied Psychology, University of Nottingham
9. Dr Rafia Rafique, Post Doctoral Researcher, Division of Psychiatry and Applied Psychology, University of Nottingham
The development is likely to take approximately 12 months before publication and dissemination www.optiongrid.org
If you would like to hear more about the Alopecia Option Grid, please contact Gwennan on firstname.lastname@example.org