Dr Rafia Rafique (Post Doc
researcher) and Dr Nigel Hunt (Associate Professor, Division of Psychiatry and
Applied Psychology, School of Medicine, University of Nottingham) are carrying
out a study to further understanding about every day psychosocial experiences
of people with Alopecia. They are also interested in investigating accounts of
current coping styles and quality of life.
They need people with alopecia/hairloss (who have not undergone a hair transplant) to take part in the study. As the study will be split in
to two phases, there are two ways that you can get involved. In the first phase of
the study, British born people 18 years and above, having lived with alopecia
for at least one year, will be required to answer questions through an online
survey link. To take part in this study
and help Dr Rafique and Dr Hunt with their research please complete the survey
at the following link (https://www.survey.bris.ac.uk/nottingham/alopecia). It will only take about 30 minutes to complete. You
can see all the Participant Information below.
The second phase of the
study will involve people being interviewed. If you are interested in participating in the second phase of the study
please contact Dr Rafique for further information at firstname.lastname@example.org.
The study will contribute
towards the understanding of experiences of people with Alopecia.
Title of Study: Self-Concept, Social functioning and
Quality of life of Patients with Alopecia: A Qualitative and Quantitative
Analysis across two Cultures
The research is a non-funded project that is being
conducted by Dr Rafia Rafique & Dr Nigel Hunt ,
Division of Psychiatry and Applied Psychology, School of Medicine, University
What is the purpose of the study?
From this study, the researchers are interested in
understanding the everyday psychosocial experiences, coping strategies and
quality of life of people with Alopecia. Moreover the researchers hope to get
an understanding of cross-cultural perceptions towards hair loss.
Why have I been invited?
British born people, 18 years and above having lived
with alopecia for at-least one year (who have not undergone a hair transplant)
will be required to answer questions through Bristol online survey link
displayed on the Alopecia UK website.
Do I have to take part?
It is up to you to decide whether or not to take
part. If you do decide to take part you will be asked to complete a Bristol
online survey, and this will be considered as consent.
What are the possible disadvantages and risks of
There are no foreseeable risks associated with
participation in this study.
What are the possible benefits of taking part?
You will not directly benefit from your participation
in this study. However, your participation in this study may contribute to the
understanding of every day experiences of people with hair loss, particularly
those with Alopecia. The information thus obtained will help in recommendations
for counselling and psychotherapy services for people with Alopecia and pave
the way for future research.
What if there is a problem?
If you have a concern about any aspect of this study,
you should ask to speak to the researchers who will do their best to answer
your questions. The researchers contact details are given at the end of this
Will my taking part in the study be kept
The data collected in this study will be secured and
kept anonymous and confidential. We will follow ethical and legal practice and
all information about you will be handled in confidence.
What will happen if I don’t want to carry on with the
The participation in this study is voluntary and you
are free to withdraw at any time, without giving any reason. However once data
has been entered in the Bristol Online survey link, University of Nottingham
database it may not be possible for data to be extracted and destroyed.
What will happen to the results of the research
We intend to publish the results of the research once
the study ends. Those of you who are interested in the results will be able to
request a copy of the published article from the researcher. You will not be
identified in any report/publication.
Second Phase of the study
In the second phase of the study we need volunteers
for an interview. Participants will be asked to give a half an hour audio taped
interview. The interview will preferably be carried out at a place where the
interviewee feels most comfortable to be interviewed. No one except the
principal investigator will have access to the audio tapes, and they will be
erased once the interviews have been transcribed. Those interested in giving
the interviews can contact via email.
Further information and contact details
If you have concerns or questions about this study
please contact the researcher: Dr Rafia Rafique, University of
Nottingham, office 0115 (84) 66640 or email: email@example.com.