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Participants with alopecia/hair loss needed for research study

11th March 2014

Dr Rafia Rafique (Post Doc researcher) and Dr Nigel Hunt (Associate Professor, Division of Psychiatry and Applied Psychology, School of Medicine, University of Nottingham) are carrying out a study to further understanding about every day psychosocial experiences of people with Alopecia. They are also interested in investigating accounts of current coping styles and quality of life.

They need people with alopecia/hairloss (who have not undergone a hair transplant) to take part in the study. As the study will be split in to two phases, there are two ways that you can get involved. In the first phase of the study, British born people 18 years and above, having lived with alopecia for at least one year, will be required to answer questions through an online survey link. To take part in this study and help Dr Rafique and Dr Hunt with their research please complete the survey at the following link (https://www.survey.bris.ac.uk/nottingham/alopecia). It will only take about 30 minutes to complete. You can see all the Participant Information below.

The second phase of the study will involve people being interviewed. If you are interested in participating in the second phase of the study please contact Dr Rafique for further information at rafia.rafique@nottingham.ac.uk.

The study will contribute towards the understanding of experiences of people with Alopecia.

 

Participant Information…

Title of Study: Self-Concept, Social functioning and Quality of life of Patients with Alopecia: A Qualitative and Quantitative Analysis across two Cultures 

The research is a non-funded project that is being conducted by Dr Rafia Rafique & Dr Nigel Hunt , Division of Psychiatry and Applied Psychology, School of Medicine, University of Nottingham. 

What is the purpose of the study? 

From this study, the researchers are interested in understanding the everyday psychosocial experiences, coping strategies and quality of life of people with Alopecia. Moreover the researchers hope to get an understanding of cross-cultural perceptions towards hair loss. 

Why have I been invited? 

British born people, 18 years and above having lived with alopecia for at-least one year (who have not undergone a hair transplant) will be required to answer questions through Bristol online survey link displayed on the Alopecia UK website.  

Do I have to take part? 

It is up to you to decide whether or not to take part. If you do decide to take part you will be asked to complete a Bristol online survey, and this will be considered as consent. 

What are the possible disadvantages and risks of taking part? 

There are no foreseeable risks associated with participation in this study.  

What are the possible benefits of taking part? 

You will not directly benefit from your participation in this study. However, your participation in this study may contribute to the understanding of every day experiences of people with hair loss, particularly those with Alopecia. The information thus obtained will help in recommendations for counselling and psychotherapy services for people with Alopecia and pave the way for future research. 

What if there is a problem? 

If you have a concern about any aspect of this study, you should ask to speak to the researchers who will do their best to answer your questions. The researchers contact details are given at the end of this information sheet.  

Will my taking part in the study be kept confidential? 

The data collected in this study will be secured and kept anonymous and confidential. We will follow ethical and legal practice and all information about you will be handled in confidence. 

What will happen if I don’t want to carry on with the study? 

The participation in this study is voluntary and you are free to withdraw at any time, without giving any reason. However once data has been entered in the Bristol Online survey link, University of Nottingham database it may not be possible for data to be extracted and destroyed. 

What will happen to the results of the research study? 

We intend to publish the results of the research once the study ends. Those of you who are interested in the results will be able to request a copy of the published article from the researcher. You will not be identified in any report/publication. 

Second Phase of the study 

In the second phase of the study we need volunteers for an interview. Participants will be asked to give a half an hour audio taped interview. The interview will preferably be carried out at a place where the interviewee feels most comfortable to be interviewed. No one except the principal investigator will have access to the audio tapes, and they will be erased once the interviews have been transcribed. Those interested in giving the interviews can contact via email. 

Further information and contact details 

If you have concerns or questions about this study please contact the researcher:  Dr Rafia Rafique, University of Nottingham, office 0115 (84) 66640 or email: rafia.rafique@nottingham.ac.uk. 




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